Monday, December 16, 2013

Where is MS taking me or I am I going there because of having MS?

Today was my annual 6 month visit with my neurologist. This visit once again is making me question If I need a doctor who specializes in MS?  (Which he has stated in past visits that in my case it maybe a good idea.) 

I did get a good report saying my Copaxzone needs to continue, as he feels it's working a I have no progression. I also need too increase my exercise, reaching my previous level or higher of physical ability and activity. ( reminding me he currently does not have a MS patient that is as active as I am and doing as well either!) 

However proceeding in my appointment, I started asking him for different tests regarding   New treatments they are finding may eliminate symptoms .....being dumbfounded,  He shook his head, looked at me as though I had 3 heads!  Suggested I go back to my family doctor and look into it further as he had no knowledge if this. I do trust this man and his medical opinion, don't get me wrong here. I appreciated this mans honesty and bluntness, which is probably why I look forward to our visits. Besides the fact he is kinda cute in his own way! LoL 

Now he had me thinking.... What? Isn't he suppose to know about this?   What am I just someone they are putting through the process and  waiting for me to get worse? Each time I go he seems amazed at how I am handling life's situations and it's #stress that is throws upon me. So,  is he waiting for me to fail, hit remission or is he taking notes to #help others who are struggling?  Maybe that is it? 

Thinking back last year at this time he did ask if he could give my name and number to a few patients that may need my TBB Team Beach Body coaching to help them deal with their illness.... 

Still I am left with the questions where and when I can get these few #tests? Just  to see if these simple affordable treatments, they have found would benefit me? 

So my next task, is find this information again, print it out and this time and demand for this to be done!  Why would I want 1 year of simple treatment to eliminate symptoms to give me a better quality of living?

Finding someday I will not have to #injecting myself daily with chemicals  that we have no idea if it is benefiting me by slowing down or stopping this disease from progressing which does create it's own side affects! 

I will not give into this beast!!! I want my life back I once had, at lest close to it! I realize everything happens for a reason. I just want to enjoy my life positively, and that it will! 


Monday, November 4, 2013

A MS Cure?

I have gotten to believe there is only treatments for MS, not cures.  As of yet! I did find this video very informative and positive.  They figure that do have a treatment that may work to remove those symptoms that we suffer from.  These symptoms do happen with those of us with MS.  However their frequency very from person to person.  I really suggest watching this video not only to understand what MS Multiple Sclerosis  is but to see how far they have come to understand this disease.  I believe we are closer to the cure.

MS Cure? Click here

Thursday, October 31, 2013

Does your life depend on it?

Today having more energy then I have had in sometime and am so excited.  I feel my Fatigue Management approach is actually starting to over power this Monster. I always get disappointed when I know I'm loosing my battle and my physical/mental abilities has been compromised and fatigue has set in. In knowing the difficult climb I am in for to regain my stamina and strength.

I love this motivational picture.  As I do believe; "My Life Depends On staying active."  Within the last 3 years of this
chronic illness I am finding summer feeds this monster and slowly Creeps out from his box.  This last two years I find by pushing myself with slow intervals of physical activity helps me gain control of this illness with on and off battles throughout the seasons. But with each time, it seems not only to be harder physically but quicker to regain myself.

Starting to become active, is a challenge for the average person but even more so when you have the MSMonster fighting against you along the way.  


What it is like to fight MS? 
My battle with it as I call it; "My Monster in the Box! "

Visualize a big hairy monster (Giant like, like in the movies). Now visualize yourself, wrestling that huge strong beast and trying to place him in a steel cage or box....by yourself.  With thing but your own body and strength. 

That is my experience and struggle with this beast within,  adding this over powering fatigue that over whelms those of us with MS. 

I fight this monster with exercise and a plant basted diet. I start with walking and work my way up to more challenging activities. I do push myself to exercise just like the fitness gruo' out there. However, that monster knocks be down when I have pushed my body to far.  He then show’s himself setting me back, sometimes back to the start. 


I believe that I am doing this for My Life Depends On It. To fight back and stay active. My quality of life.  I refuse to use a wheel chair and pray that I will never have to…. But if I do, you can bet, I will be fighting to get out of that thing and walk again.

Friday, October 25, 2013

Will I be SORE TODDAY for a STRONGER TOMORROW?


Well today I wake and my grabbed my workout cloths from the end of my bed and put them on, downed my Pre workout drink.  Set out up my driveway not to sure which direction I was going to go, just knowing I had to fight this fatigue of    so I could get this   back into his #box where he belongs!  I know this week I have been  but now that it is  I know I need to so I can   once again. 

As I enjoyed the cool morning air, as I continued across the highway and down around a block that was more for the distance and not so much for the challenge of the land.  It is a level route pretty much pushing my limits on distance and time. Thought I did pretty good going 3 miles in under an hour burning 310 calories.  By lunch time I wanted to lay down and have a nap but had other commitments booked. Funny how I felt just 10 minutes ago I could go for another walk although my legs felt like rubber and my emotions where up and down like a roller coster? The Monster within, was playing with me as now feeling like I have ran a marathon and I ache from head to toe.  You have been playing this ride all week.

I am getting to know this #MS #Monster all too well!  Oh, how much I have learned from you this last 3 years! Slow and steady wins the day! I know today I am sore, however, I will be even stronger tomorrow.

Monday, October 7, 2013

How low pressure can affects MS

Today maybe a trying day for me,  as it is for others. I tell myself; "I have been given this challenge to show others, how to live and grow, battling this monster, that so many don't understand." I believe having a positive mental attitude is an important key to live a positive fulfilling life no matter what your challenge is.

Today the weather lows are playing upon my head, with not only pressure but, the feeling a tingling sensation across the top of my brain, that seems to toggle off and on where-ever and whenever. 

Yes , it tingles while I get the feeling of my hair lifting as it moves around. Adding a swirling motion to my balance just makes it more entertaining for the moment and makes me thankful for my time I have being healthy and without this presence. 

However, when days like these arrive, like an unexpected unwanted guest, I try to live my life making things seem normal, as it once was. By pushing myself to complete the simplest things around the home and keeping a positive attitude, I believe is not just an example for my family as well as those others me, that there is always a good side to every experience.  I find and not only be challenging but the way I see it, I need to look at what I can do, not what I can't. I know it is just for a while and tomorrow will bring a new day with new beginnings.

I try to live my life making things seem normal, as it once was, by pushing myself to complete the simplest things around the home. I don't want pity or others to feel sorry,or bad for me because my family and I Live with me having MS I just want people aware that things don't aways seem as wonderful as the look and appear. I hope this blog will help others understand more about those living with Multiple  Sclerosis (MS).

I do believe that we attract, what we think.  So think positive and believe things will only get better.  Be thankful for what you have and can do today! I am thankful for all the good in my life!