Sunday, July 5, 2020

What I have learned in the COVID-19 Pandemic and having MS

For us here in Ontario Canada, the pandemic of  COVID-19, the lock down started for all communities and its residence in May 2020, for us here. When the world came to a sudden halt and everyone was to stay home, indoors and keep to those who lived under your own roof.  Many ordered their food from the local grocery stores and was delivered to their door steps.  People where leaving what they could for days and with other things they would disinfect the bags, boxes and their contents before entering the home.  It seemed as though the world as we knew it had come to an end and it was up to ourselves to keep our families safe and inside. Many not understanding what really was happening and just following government orders. 

Those who could started working from home, and others applied for the COVID relief founding the Canadian Government was offering to try and help those who depending on their pay checks to keep their payments  of mortgages and loans in check. Many businesses, even with the relief offered to them, still struggled and many closed their doors for good.  While others, renovated their products and helped supply the Personal Protective Equipment (PPE) and supplies needed to help keep the frontline workers safe throughout the pandemic as PPE quickly became limited with other countries stopping shipments of these items into our Country. Being scared that they too did not have enough for their own supply needed. 

Personally I think this shocked our own government into realizing they could not depend on other countries to work with us in a desperate time of need, like we in the past, have always been there to help our neighbouring Country out. Our own business here in Canada knew it was time to step up and help one another out.  Politicians, quickly assisted and reassured our residence that this would not happen again in history as the PPE's started shipping products out across our country. 

In time people where realizing how quick this illness was spreading within the province of  Quebec having the highest number of cases and deaths, with Ontario next behind.  Which this information can be found through out any Internet search. Testings of residence increased to find a truer stats on how the illness was spreading.  

Quickly old age homes became infected by the numbers and it was revealed not only to the public but the government how these homes where not giving the care that the elders needed or deserved.  Too bad it took having a world pandemic to reveal what terrible living situations and lack of care these people who worked hard in their younger years to give us the lives we have now. Not only that but how management have been providing lack of  workers needed to make sure these residences had the care they needed and deserved.  Placing the strain on onto the caregivers.  I am hoping now this situation being revealed will be better regulated not only for the residence of long term care fissility's but, also help the workers who provide this care.  People pay big money to have their parents and grandparents in these homes thinking they are getting the best care they can have.  Not all long term homes live up to this standard.  Hoping this being reviled as it has on the news, there will be better laws and regulations kept in check in the future.  

Many people have expressed anxiety of having to remain home and stop all travel.  Schools where shut down and people sat watching the new wondering when this would all stop and go back to life.  Life as we knew it is gone and I believe things that they are implementing now will be apart of our new normal.  Only to protect ourselves and others health and well-being.  

There are many theories one can find on any search on the internet as to how all this came about.  From the government being behind this silent chemical war fare to a tactic to eliminate cash and having to use cards for payment as it electronic payments create  paper trails for government officials to better control transactions that can bring in more revenue and eliminate cash all together.  Even with the bartering system they can not control what taxes they should receive from work done.  Someone agrees to you do this for me and I will do that for you....once again like cash it can be hard for them to track.  With eliminating cash dealings people have no choice.  It will be interesting to see where this all goes in the future. 

I have also learned that people can not live a life with a pandemic for long without out other groups trying to cause more crisis. Which can also be found throughout internet searches. 

Living through this pandemic life for those of us being elderly or having an autoimmune illnesses/ immune compromised illnesses is not really much different.  As we isolate ourselves daily from community and acquaintances so we do not pick up any illnesses.  We don't talk to many people throughout the day, weeks or months. Often many of us are stuck at home at the best of times. Either we can't get out or physically we don't feel well enough to get out.  People tend to leave us behind as they invite us out but quickly  leave us out because they assume we will decline the invitation. 

So when people ask me how I am doing with this pandemic.  I say good actually.  I know do not have to personally attend doctors appointments out of town as it is done virtually or over the telephone.  Which often days of an appointment in or out of town is mentally and physically draining. 

Ordering online and getting it brought to us, is also less draining.  Meeting with a friend on zoom, FaceTime or video conferencing is much less draining. Only there is no human contact.  Which is the way it is meant to be until the pandemic is over and all services in our communities is reopened.   I am hoping that this will make others think about those who are normally stuck at home and do not have contact much with others and quietly  sit at home.  

Maybe one can drop a meal off for someone or offer to pick things up for them when all his has settled down.  Hoping maybe people will pick up the phone just to call and say hello, and check on someone.  I am hoping the communities will become  more kinder  and caring citizens. 

Thursday, April 30, 2020

Meditation benefits with or without Multiple Sclerosis

Meditation and how it benefits Multiple Sclerosis  Meditation has been practised for thousands of years.  Which is why I thought I would at lest give it a try.  It is intend to alter our state of consciousness without using drugs.  It helps get the core to open the heart and develop a more stable balance and calmer mind.

It encourages and heightens state of awareness and focused attention. People use meditation in; religion, for spiritual  and therapeutic reasons. There are many types of meditation that can be practised with many health benefits.

Living today in our modern world with our hectic lifestyles our body is often in a chronic state of stress, giving our body the “fight or flight" response state within our nervous system.  over time, this dampens levels of dopamine and serotonin in the brain, our “feel good” neurotransmitters. Low levels of these neurotransmitters are commonly associated with the loss of; pleasure, gastrointestinal issues, weakened immune systems, tension, anxiety and depression.

There are many types of meditation that is practised and are for different reasons.  Guided meditation is for the beginner and I find the easies to follow.  It is guided by voice talking to you you to where your thoughts and mind should focus on, as our minds have a tendency to wonder.  

The three most common guided meditation are: mindfulness, stress reduction and relaxation. Which you can find a short meditation is used at the end of most Yoga sessions, as Meditation and Yoga are often practised together. 

Stated from the National Multiple Sclerosis Society;  "The relaxing benefits of yoga may also help manage the unique challenges of MS, such as lying in an MRI machine for extended periods of time, receiving injections or infusions, staying calm during an exacerbation and focusing when meeting with your health care professionals."
It is also proven that yoga decreased fatigue and other medical conditions.  Reports say that they find improvements in anxiety, depression, fatigue, bladder function, pain, spasticity, weakness and walking. There personal reports and saying that yoga can help sexual function. For general health of people with or without Multiple Sclerosis, yoga may improve arthritis pain, reduce blood pressure, and promote weight loss. 

You can also find free meditation through a search on internet or any of these apps like; Facebook, Mindfulness, Headspace, YouTube and many more.

Have you tried Meditation?  How did it help you? I would love to hear your opinion below. 

Friday, April 24, 2020

Hello April 2020

Before something great happens, everything falls apart.  Now that is a great quote for this post!

Wow it is hard to believe the time as zoomed by so fast and it is now 2020. How fitting this quote is as it seems my health and wellness fell apart and I look forward in seeing the great things that lay ahead for us.

As my readers could assume that yes I have had health issues and I had to stop blogging for a bit.  I really hope to get back at this blog and sharing how my life is, as I am living with Multiple Sclerosis now?

I have been having relapses and I have had new lesions on my brain.  Now recently in February 2020 my last MRI report has came back saying I have had two lesions that have grown. I have been living with this illness now, soon to be 10 years.  I am struggling physically but still walking without aid of any kind.  So I think I am doing pretty good.

So, yes it seems things have to fall apart before before great things happen.  I do believe this year great things are going to happen for many of us.   Positive mindset is my key this year to any success.

I am hear and I am still fighting back to gain this health and wellness thing.  I will not give up.  It is time I start sharing once again.  I look forward in spending some time here with you as I share things of interest that benefits me with this chronic illness called M S.  Hoping it may help you or others as well.

Thank you,

Friday, January 13, 2017

Saying hello to 2017

As this year ends and a new year begins, I cross over this bridge. With every step, I will let the negative things flow down the stream.  Saying goodbye to 2016 and its events that carried me through this journey, leaving me with a strong positive mindset.  

With this MS journey of mine, I like many others with this disease have been struggling with depression. My depression was not just from my diagnosis of having this illness, has been from what the illness has done to me from my past relapses.  I often struggle off and on throughout the year. With the lack of sun in the winter months, it is important that I stay consistent with taking my Vitamin D. In my research, it is  repetitive in my findings within MS research sites, which states that with MS and taking this supplement, improves our health and helps diminishes some of the symptoms that we with MS often experience. Such as; Fatigue, Numbness, Tingling, Memory, dizziness, blurry vision, just to mention a few.

Some start the New Year with: "New Year, New me". For me, that saying is nothing but a load of crap!  I do, however, use this time of year to look back and measure how my disease is affecting my health,  my family, my over-all well-being and how it is affecting my life. How I can now improve things. 

Depression had been one of the things I have been struggling with this year.  Which is why I find I haven't been doing my blog posts.  Some of the MS symptoms I have been experiencing this past year has affected me not only emotionally but also physically. Keeping me closer to home.  I know these things usually pass just as many of the other symptoms have. It just seems that it affected me on a deeper level then the symptoms in the past have. 

Maybe, triggering the thoughts within me, telling me; "Yes girl, you really do have MS, now deal with it!" Now get out there and improve your life while you can. You face each day on a positive thought.  Physically do what you can to improve your health, because, you are the only one that can do it.  
No one can do it for you.

What is it you would like to improve this year? 
Let me know in the comments below. I would love to hear your feedback.


* Please read ~ Disclaimer* 

Friday, June 24, 2016

My MS Update June 2016

Today I thought I would reach out and give you, my loyal readers and update on my health.  I know I haven't posted in a few months.  I am sorry for this as I know with reading blogs' we often like to have regular updates to read.

This picture was to record today's MS Physiotherapy.  I walked 3.75 miles this morning in a hour and a half. A couple years ago, I managed to walk this in an hour.  I am getting there.  Early mornings, and determination, I know I will get there again.

I have been really focusing on my health, physically and mentally.  With spring comes flare ups with my Multiple Sclerosis and some season changes are worse for me then others. I have been reassured by the results of my recent MRI, that my MS is not progressing. I have no changes in this MRI or new damage done since my previous MRI a year ago. This is great news! I am happy to share this with you as it is great news with all the symptoms and what seems as flare ups I have had this last year.  Once again conforming that they are; Pseudo-Relapses that I have been experiencing. Seems just as a relapse only no damage is being done as my Copaxzone daily injections are working. Preventing my immune system from removing the myelin coating on my nerves.

Even though I am experiencing; Extreme Emotions,  Unitary Urgency, face twitching, memory issues, fatigue, difficulty sleeping and a few other things.  I know these will eventually ease off and go away as the season of summer comes to an end.  Mean time I will keep walking as much as I can. Stay cool in my pool or cold showers, try and nap when needed.  I will continue to concentrate on nutrition and hydrate my body with lots of water daily.

Some of you know, MS is not an easy disease to live with.  I believe we have to keep a positive outlook on our life to keep it managed. We all have bad days with or without illness in our lives.  I just try not to make it out to be worse then it is.  I try not to focus on the negative things it has done to me or taken from me...... as it will only make things harder to deal with.

Keep cool and make the best out of each day. Until next time. Take care of yourself!
Let me know how you are doing this summer....
Looking forward in hearing from you.

Friday, March 11, 2016

When others make you feel down and depressed.

The past few days the sun has been shining and the water has been running. My father always said, just as the picture above. "When the snowbanks are looking dirty you know that spring is near."

Today's lack of sunshine adding the dullness floating in the air this time of year can leave the normal uplifted spirited person feeling, well, down. When I look back on the emotional week I have had, waking with being back to cooler temperatures, it is no wonder I feel so down today. It does make sense.

This is the time we do feel depressed from the long cold winter months, spring weather showing up and disappearing, as we long for warmer weather and the sun bright in the sky.  

As I sit and ponder the events over the past week.  I ask myself;"Why do I let someone else's actions towards me due to their own insecurity, affect me?  

I feel and see they are only feeling, loss of control of their life. Then lashing out at me as I am the closest and easiest outlet for their frustration.  Trying to grab at straws to regain control.  Control, over something they can not control, as they can only control their own actions and not of others around them.  But leaving me asking myself; "Why do I let it affect my own enjoyment of my life? It really is not me that they are upset and mad at." 

Because I feel, that I try and treat others as best as I know how to with what I know. I try and not take my frustrations out on others and internally figure out how I can deal with what has been done to me. Yes, I may talk to a trusting friend and try and figure out what has caused such events.  But to put blame on another? Not! I am thinking it all comes down to we are all at different places in life. Many are still learning while they are only our past lessons of our own life.  

"When you know better you do better".  

We all just need to believe in ourselves and know that there are better days ahead. We must forgive and trust the process and know that they too are on their own journey.  Forgive and move on.  Knowing others sometimes hurt others only to make themselves feel better.  They are only wanting someone else to also feel their pain and frustration they are experiencing. Not even realizing they are only causing more hurt and pain to others and themselves.

As I write, I recall the teachings of Lisa A Romano. Thinking how she has opened my mind to see things in a different way as to what I grew up with. 

At first, I blamed myself. Now I see that Lisas' words in her videoes' have stopped me of my old thinking and opened my heart and mind even wider. Her words are often spoken. " It is not your fault dear one. It is not you, dear one, it is is your programming".

I feel much relief and a calmness over me now.  Hoping one day this person will find their own peace awaking a new knowledge that will give them peace too. the knowledge that they can not control others but only themselves.

Sometimes we look at our life and know all the things we dislike about it, but never really focusing on the things we want in our lives. 

I have learned when others make you feel down and depressed, it is not you.  It is a reflection of how they see themselves and do not know how to deal with it themselves. What opened the door to me seeing things with way was Lisas' first book she wrote. The Road Back to Me.  You can get it on Amazon or in Itunes on audio. 

Please let me know down bellow how you calm yourself when you are feeling down about how others have miss treated you. I would love to hear from you.

Thursday, March 10, 2016

WW Week 8 Update with MS

Well, I thought I would give you and update on my Weight Watchers weight loss journey as I have completed week 8. I am down a total of 8lbs. I have been finding that this program is all coming back to me and I feel I am just back in the saddle, sort of speak. This is not my first time joining after all.  I have been working with the MS Monster within as I also have had to manage a little stress last week that hit me from behind.

I have to admit to being a "Scale Aholic".  You know those annoying people who have to step on the bathroom scale every morning after they do their morning visit to the loo? Yes, I am one of those, ones who registers and plans out the days eating by if I have gained or lost any weight. Yes, while this stress hit I gained weight but, am very pleased I managed to get it off before my weigh in yesterday. Wednesday. I usually weigh-in in the morning on my scale and in the evening at the meeting scale, which is always the same so far. However, yesterday we have been experiencing very mild temperatures and has created Fogg from the snow melting so fast, so I did not attend my evening meeting last night. I do not feel comfortable traveling in foggy weather when you can hardly see 3 feet in front of you.

Yesterday I did manage to reach my Fitbit step goal and I will today as well.  I know this as I walked on my treadmill reaching almost 3 miles.  I can feel I have over did myself and have decided to cancel going uptown this afternoon.  

I would love to hear if you too are using WW, Weight Watchers, as your way of losing weight.  I would love to hear how your journey is going as well.

Wednesday, February 24, 2016

MS'ers Weight Loss Journey with Weight Watchers Week 6

Yes, I joined Weight Watchers online six weeks ago now. I joined online to assist in my weight loss journey. I find it is much more difficult to loose weight while I fight the MS Monster within. Looking back on my past, in my younger years in school at track meets and such. It is easy to recall how I struggled physically with exercise or activity. I thought I was just out of shape or over weight at the time. Now I realize that the struggle and silent fight to stop my activity inside my body was everything but normal. As it seems the MS Monster, doesn't like my body being stronger than him. Suprising he knows the fight is on to get him in that box and lock him in there! 

Online is great now with the connect support you can get from others. It isn't the same as attending meetings in person. So I decided to attend the local meetings 3 weeks ago. Wednesday is our weigh in day and there is no meeting this week, being tonight. So weighed in on my scale which gives the same results. I am down 5.1 lbs. in a week. Thinking it's more due to having strep throat but I'll take it anyway. Total weight lost is 8.9 lbs. Yay me! ⭐️

Thursday, February 11, 2016

3 Reasons why I have a hard time in public with MS

MS and Living Life
Hey, There!

Last night I went to my first WW, (Weight Watchers) meeting in like two years. I was very apprehensive to go.  I had mixed feelings while I was on this twenty-minute drive.  I was feeling very unsure and may be experiencing a little anxiety.  

First of all, that I had to go to a "meeting" just to get this weight off that I gained due to my trial medication for depression. I had been going to Weight Watchers off and on since 2004.  Feeling disappointed in myself that I couldn't lose this extra weight on my own.  In turn, telling myself that; "I shouldn't be so hard on myself. That going to the meetings in the past gave me friendly support from others who want to lose as well. The local meetings did actually help keep me more accountable. 

Secondly, I knew there was going to be a new leader and well as new members. ---- New members? ------ Thinking, that there will probably people going that I had known from the past years. ------ Yes, maybe a little anxiety was going on? Living in a small northern Ontario community, everyone knows everyone. 

Let me explain why I was getting freaked out a little. You see, since my last major relapse. In which I got my original diagnosis of MS, this Monster had also taken parts of my memory.  In scenarios like these, it takes remembering who people are or were. I always see the face, but to remember who and where they lived? How were they apart of my life in the past? Well, the MS Monster has taken a big part of that memory from me. Remembering things that took place, people I once knew and sadly, sometimes even people I have recently met.

Sometimes, I do feel comfortable saying; "I am sorry, but how is it that I know you?  I recognize you. However, I just can't place how I know you?" Which sometimes in these cases, the situation goes downhill quickly.  As the person has no idea that I have progressed in any illness and becomes questionable. You can see the disappointment as  they showing discussed in their facial expressions. Often not even realizing it.  All due to the fact I can't remember them and I should. Oftentimes they quickly expose our dealings and that they were a major client of our families business in the distant or recent past. Sometimes it hearing their story tweaks my memory.

Ninety-five percent of the time I feel embarrassed and upset because of their unknown reaction I had seen.  Not only with myself not being able to remember, but their own reaction of feeling unimportant.  Then I explain why I don't remember them and apologize to sooth their quick judgment. 

Trying to ease the situation, their reaction is to brush it off as though they too have memory issues and that it is all a part of old age. Then they openly explain how we know each other. I have learned that when this happens it is their lack of knowledge of the disease itself and see that they are the one feeling bad. They by saying this are only trying to make me feel better about the whole situation.  Making others feel bad is never my intention at all.  These moments are the ones that make me feel most uncomfortable with having this MS Monster living within me. Other times introductions and meetings go smoothly without incident which comes to such a big relief to me.

Thirdly, when I am out there are when a few people find out what it is that I have they automatically think of someone they know who has Multiple Sclerosis. Then quickly spits out negative comments. I am now aware that they think they are trying to make me understand that they know what it is that I am going through.  Little known to them, that they are only just hurtful and negative comments.   Saying things you should never say to someone with MS.

Comments like: 
  • "But you look so good, how can you be sick?"
  • "You're not in a wheelchair or have a cane yet, you are doing so good!"
  • "I know someone with that and they are; in a wheelchair now, can't talk, and now needs extra care." 
  • "So and so died from MS."
  •  "My nabour has that and she now can't drive" or "lost her job because she can't work." 
  • "All you need to do is eat better and exercise"

  • "Did you hear about "so and so" they were cured. Why don't you try what they did?"

Knowing their intentions are not meant to be, curl or mean.  However, each case of MS is different.  I understand that they many are truly trying to be nice. Only trying to make me feel that they understand what I am going through and not alone. Speaking for many others with MS these comments are actually offensive. 

I use these moments to try and educate others on what Multiple Sclerosis is and how far they have come with gaining knowledge about it.  How close they have moved toward finding a cure for Multiple Sclerosis.  I also reassure them that those of us that are our own advocates of MS are on top of the research that is happening at any moment of any time.  Most of us who have MS, know more about what we have, how to manage it and what new treatments have come available then our own family doctors.  Keep in mind.  Our family doctors don't just specialize in one illness but help treat many illnesses.  I am truly grateful for my family doctor and her staff, as they are always there for me and are quick to help when I am having MS issues or a flare-up.

In conclusion to my first meeting. I feel that it turned out well.  We had enough people join that our meetings could run until the middle of April.  Sad that I had to pay for my meeting membership even though I had an online membership.  I did see a couple women that I do know and hadn't seen in a long time. I also got to meet our new leader, who seems quite nice and positive. She is more than willing to answer questions and help us in any way. I am looking forward to our next meeting in a week. 

Wednesday, February 3, 2016

MS is a life changer!

Today, I start and write with a heavy heart. Not because I have lost a loved one or someone dear to me.  But just realizing myself, of how much Multiple Sclerosis has quietly taken from me.  Their is so many things I want to do, so many things I use to enjoy and took for granted.  

"Don't take any day for granted. "

I look back and I see how I lived life to the fullest.  I loved helping everyone and always tried to make someone smile. I put all I had into what I was doing whether it was taking the kids to do something or helping someone out with something. I put all I had into my career no matter what I was doing at the time. 

"Give it your best or don't do it at all"

Now, that was a place I never gave up on either.  I did so many things I enjoyed. Reflexology, Computer Training, Web Design, Bookkeeping and then I got my AZ drivers license to not only do the office work of our construction company, but I wanted out in the field, out with our customers. I had also gained my the Heavy Equipment Licenses I needed to qualify to work with these machines but, also get them too and from the jobs. I loved entertaining.  We would have BBQ’s and pool parties, evening campfires in the summer. Our friends and their kids would be over and our kids with their friends.  It was like Grand Central Station pretty much most of the time. I look back and see how happy I was and what a great life I had been living.

"Don't look back, you can't go back there. Look ahead!"

Lately, this dam disease has had me really thinking about what it has taken from me. From our family.  Now thinking, I did all of those things without even thinking about how I would get it done, I just did it. Never, thinking about how I would feel while doing it. If I could even follow it through with out being drained. Even possibly pushing myself to of total exhaustion. Ending up sleeping for days or even having a flare up that might leave me disabled in some way. Oh, how my life has changed yes.

Some of our stuff

Today, I experienced my family stepping in changing plans, without me. Plans that I had been looking forward too for days and was so excited. These change in plans, where quick and took me off guard.  My emotions quickly grew within me, as I broke down and cried as I tried explaining to my husband, that they where making me feel that they felt I was incapable and inadequate, as tears ran down my cheeks like a river.

He reassured me that was the last thing they wanted me to feel. That they see what I can handle and what I can’t.  He reassured me, they where under unforeseen circumstances that came up for them, that they where only worried for my health and didn’t want my health to worsen. 

I do however, realized how I need to sometimes,  swallow my pride and except that I have to live with this illness.  That they too are living with this illness. We are learning that, I can not fight it. 

With this, I realize that my family is actually growing up and are only trying to help me out just as I want to help them. This makes me see that the most fulfilling job was raising my children. I must have done something right. Why? Because I see that they know sometimes they now have to also look out for me, just as I have them all these years.

I don’t look for pity, nor for others to feel sorry for me and my family, as we live with this disease. I just am trying to share so others grow awareness of that his is an invisible  disease. For some it can be managed. That is exactly what I am trying to do.

Got this somewhere off the Internet It was on my computer.

Have you something that has changed your life? Let me know in the comments in how you deal with these changes.  I would like to hear from you.

Tuesday, February 2, 2016

MS Has Made Me

Today I am thankful for my family I have and have put here.....

Let us just say; My in home and out of house ...... family. 

At this time, I have a husband of 28 years, whom I love dearly. 

One; A 25 young business family man, with a thriving, cute, energetic little boy bundle, I call; "Nannas' Super Star".  Who looks just like his Dad.  He's carefree and delightful as both his parents. 

Two; A 22 year old daughter and her mate, with a fur baby. He is not pro-ceived as, "just a dog!" . Having a personality of a well behaved child.

Third; A 21 year old young family man/ volunteer fireman,  of a beautiful, smart young girl,  who is, "Nanna's Princes". Caring and comical like her father and with a cuteness if her mother. 

I can not say enough of how much I love and am proud I am of them all.

They all work so  hard to make ends meet, just as many of your families do. I can not explain how much they  mean to me. But just to say, they are my life, is an understatement. 

I ; wake, breathe eat and thrive from the presents of each of them and their family. They give me the reason I breathe and keep up the fight, not giving up or give in to my daily struggles. Some days I pop in to see them, just to re-energize my being. 

 I can't phrase and give them enough credit for the lives they have created for themselves as well as those who love them and enjoy their presence. I am so proud of not only who they have grown to become but,  the lives they have created with their families  and friends. 

I know I am their mother and I reserve the right to brag about them. You know, if it was not for them,  I don't know I would not be who and where I am today, mentally and physically. 

My husband who thanks me  often and keeps reminding me, that it is I, who keeps our family together.... though tears and laughter. Good times and bad.

Please understand, having a chronic illness like Multiple Sclerosis, it has changed our lives. Once so young and now living their own journey. They are all that I have to hold on to, who give me hope for my future. 

They are who push me forward each  and everyday, through thick and thin. They are always here for me when I need  hand, or just to let me know they are thinking of me throughout their busy lives. 

This is my family. I am so proud and thankful to be gifted to have them in my life. MS has made me slow down, enjoy the small things in life and cherish those around me. That includes, all of my family.

Monday, January 25, 2016

A gift of walking in the northern Moon light

MS and Living Life

Walking alone this evening allowed me to take in my surroundings.  The moon is shining bright, the snow is glittering, dancing around the shadows of its trees within the picture perfect beautiful landscape before me.

As I breathe, I can feel a fresh bite from the cool air, enters my lungs.  I can not only see the stress exist my body with each breath but, I feel it as my lungs and shoulders becoming lighter with each exhale.

Theres is a  sound of the loud crunch from the cold snow with each step I take, was like music to my ears. Which brought a feeling of peacefulness. A peacefulness, leaving me feeling as though I was in a presence of many Angels surrounding me.

An experience that made me feel and think; "What a beautiful night. What a gift it is to able to experience such beauty! I am so thankful to be able to enjoy this moment on this evening, while living in Northern Ontario." What a gift! What an experience!

People we live in a rushed world.  Don't forget to stop, slow down and enjoy these small precious moments we are given in our lives.

Wishing you all the best,

Thursday, January 7, 2016

The return to the Journey to better Health with MS, Part 1

Today's MS therapy  

I swear I have a love hate relationship with this hill!

Today I decided to get off the treadmill and get out side. I pushed myself to walk past my usual stopping point of two miles. The weather and temperature was just right.  I reached the dreaded hill. I kept telling myself that I could make it to the top as I concentrated the the view of the top of the huge hill was approaching. As I reached the top without stopping I jumped in the air and said; "Yes!" Not caring if the workers could see me at the bottom working on the lines on the telephone poles. All I knew is, that I didn't stop until I got there. I had pushed myself like I had use too. This was a type of struggle that I look at as, MS muscle conditioning.  A very proud moment at this stage.

As I reached home, I could feel the burning in my thighs.  This type of pain was something I had not felt in a long time. Making me question myself,  if I did the right thing by going so far? As well as asking myself why I pushed so far in such loose snow?

I was thinking in the back of my mind, by pushing myself like this, it was how I gained strength in the past. Knowing that there would be pain that came with this kind of therapy, I knew gaining strength and endurance of walking was something that would out weigh the pain I was feeling, by far.

By MS and Living Life

As I am now trying to get warm and get rid of this chill of the damp air drinking my recovery drink to help re-nourish my muscles, remembering back a short time ago, how much easier it was a few years back when it was a daily routine I had. I will not give up on this journey of regaining my strength in my legs. This walk use to take me an hour, today it took me a hour and a half. Most important thing is I did it and I made it home. 

In conclusion of today's MS therapy of walking, I am left with mixed feelings. I am happy I managed to reach my goal of the top of the hill, completing a three mile walk. My Fitbit saying almost four miles? 

I am thinking due to the light loose snow in my steps, that possibly, I took more steps, (shorter steps), which made it register to be further with more distance? I also know I have done this in less time in the past but, I am proud that I just managed to get it done and make it home safe! 

This is a massive gain in my therapy for endurance for my leg muscles.  As I want to stop having to set every where we go, while others are standing. Yes my legs hurt but I still thrive to be as normal as I once was.  This decease, creates new normals for people.  I refuse to give up on this.  My goal is to be able to walk at lest 3 miles each day. I will not give in.

Wishing you all the best in good health and happiness. 
MS and Living Life

Saturday, January 2, 2016

Desires for 2016; Resolutions.

Well, I am not one to make goals or New Year Resolutions. They always seem to not workout the way I want them too. So, I look at it like this; "Why set myself up for failure when I am meant to succeed?" I want this year to be my best year ever!

I believe I have a wonderful life. I have worked hard for the things I have gained and for those that are around me today. I have done all that I have ever wanted.  I also have achieved more then I ever thought I would up to today. This is how I feel anyway. 

People often set goals up in the new year and achieve them and some don't, disappointing themselves.  Well, for me all I want is to reach the point where I feel strong and healthy. Most of all, keep my illness under control.  I plan on doing this by putting my own needs and wants first before others. 

You maybe thinking that I am being selfish by saying and doing this. I am telling you, it is the totally opposite. You see, in 2015, I have learned that by not putting my needs first, I can not be here, nor enjoy those I love, the way I want to.

So, I will continue to struggle and get my health under control by moving more and eating better. I will continue to learn to be a better person but watching and reading self help information. 

Just as every ending has a new beginning, I will end 2015 and begin with placing myself first. I will be making this lifestyle change.  

What are your desires for 2016? Please sure your desires with me and post them in a comment bellow.

Wishing you and yours a blessed year filled with nothing but good health and happiness in 2016. 

Wednesday, December 23, 2015

How do you react to life?

 Image by Motivation App at ITunes 

Life is 10% what happens to me and 90% how I react to it ...Charles Swindoll 

Seems the older I get and the more I learn though my journey of life, I see this quote is so true to its every word. 

Wishing you good health and happiness.

Sunday, December 20, 2015

MS fight within is like walking on thin ice.

Photo by Sherry Robichaud

"The stronger you get, the more energy you will have." Says Autumn Calabrese. 

This statement is so true. I look back 3 years ago when I had my MS total under control. That is exactly how my body  functioned and worked for me. 

I felt my body was in a remission state. Being much stronger, had more energy and good mental clarity. I had high hopes that the old me was within reach and just maybe, the old me, was able to return!  

Photo by Sherry Robichaud

Today, once again I am struggling to do the smallest of things. Feeling that pleasant comfort and strength, currently is so out of reach. 

Photo by Sherry Robichaud
Although I know it is just around the corner. Telling myself, "I just need to trust the journey , keep moving forward."

In my mind, I revisit that old feeling quite often.  Thinking about how and what I did to get my body to that feeling of a healthy strong state. How it felt to have that Monster within, locked in the is trunk, with double wrapped titanium chains? Even though today, it seems like a loosing battle against this monster within, I know, I will soon get back control. I will get it contained in his box where he belongs, so he will no longer run rapidly through my body causing uncontrollable, sometimes painful side affects.

I have my plan laid out in motion. Keeping track each day of every approach I take to weaken his strength on me.  I am moving more and more each day. Feeding my body the nutrients it needs to fight back and starve that ugly beast.
Photo by Sherry Robichaud

I am feeling extremely tired right now but,I know, my struggle at this point, will stay for a time.  I will get strong enough to reach for that branch and I will pull myself out of this quick sand. Then, just as it has before, I will begin to gain control of my body and all its ability once again. 

I will continue fight the MS  by walk, reaching my step goals over the holidays on my FitBit. If not out side, I will walk on my treadmill. I am not giving in. I know what I want, and I am not going to stop. When I reach the point of that comfort I describe above, I will continue to build more even more strength. The more strength we have, the quicker we can fight back to keep the monster in his Box. 

It always feels as if we with MS are walking on thin ice and we never know when we will fall through.  Setting us back to the start of our struggle back to better health.

I will keep fighting that silent fight from within.  I "know" I will gain strength.

Wishing you good health and happiness always. 

MSandLivingLife... Sherry

Thursday, December 3, 2015

MS Lesson: Put your needs first. Exercise and Stress.

I have been finding that just doing the normal routine things in life have been put to the back burner lately.  I really have been slacking and pushing things off to the last minute. Taking my meds, eating, brushing my teeth and even pushing myself to hold off to go to the bathroom, which, has had its consequences .   Life for me has been busy lately. Not to mention I haven't even thought about the stressful experience of having to go out Christmas shopping yet and its only a few weeks away!

I honestly have been trying to hold off of that holiday stress of the stores and aggressive grumpy people who I think have forgot what the true meaning of Christmas is. For me and my family, so much has changed and taken from us. From loosing so many that we love to me having Multiple Sclerosis, we have love the fact of just being together for a evening, meal and laughter at Christmas. 

Yes, my health is paying for my new habits of over scheduling my days and procrastination! My MS Monster has awoke and is actively playing around within my body like a puppet on a string. My mind can't seem to focus on one thing for very long and wonders off to never never land now and then.  Leaving me feel that I haven't accomplished much of anything that day. These types of days are very frustrating and disappointing.

Today, I look back  to see what I did that the times I felt better. Feeling happy , positive, more active, more alert more like the old me that could handle any unexpected situations that me be thrown in the mix.   I see these where the days and times that I put my needs first before I did anything that day. I got myself into a routine. I took my medications first, exercising of some kind, usually working up to an hour a day, ate and went off with my day. Made sure I ate healthier, fresh enriched foods that helped my body.  I put my healths needs first and had things planned out.

I was successful, much like this morning! Got up. rested, visited with my husband while we had a coffee together and ate.  I ate a banana, like most days, I try to eat something small before exercise. 

Take my pre-workout drink, I go walk or walk on the treadmill. Drink a post-workout drink, so I am not so sore the next day. 

I took my medications after a shower, got dressed as if I where going to go out and to some errands. Although today I didn't have plans to leave the house it seem to have set my day off on the right foot. Placing me in the right direction to have a successful day. This has been something I been striving for and will continue.

We all need to plan out our days by putting ourself first.  If we don't put our self and our needs first, we can't enjoy doing things and be there not only for ourselves but most important others.  I love helping my family and friends and it is most disappointing to me when I can't be there for them. I have learned I have to put myself first so I can be there for others.  

I also find by putting my need to exercise my body each day also helps me deal with not just everyday stress, but major stressors that can send us with Multiple Sclerosis, into a down word spiral. These are unwanted as it not only activates the MS Monster within but sends us into a relapse which can potentially leave us with permeant nerve damage or disabilities. 

It IS NOT a selfish act to put your needs first.  For me that has been a hard lesson to learn; You must put yourself first, so you can live as the happy and fulfilled person you are meant to be.

I would love to hear how you have benefitted by putting your needs to fit exercise into your daily routine.